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Expert's Corner
Ask the FounderVBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks. Babies with Birthmarks™Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention. Recent Medical Papers and Research
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Find a Physician Swee T Tan MB BS FRACS PhD Dr Trevor FitJohn, Interventional Radiologist Dr Charles Davis, Plastic & Cranio-Maxillofacial Surgeon Dr Philip Leadbitter, Paediatrician Dr Neil Aburn, Ophthalmologist Dr Mark Rider, Hand Surgeon Dr Peter McDonald, Oral & Maxillofacial Surgeon Does your baby have an infantile haemangioma? Two centres in New Zealand are conducting a research study treating infants with proliferating infantile haemangiomas (IH), previously called strawberry birthmarks, with a medicine known as propranolol (V00400 SB). This medication has been used for many years in infants with heart problems. THIS STUDY MAY BE APPROPRIATE FOR YOUR CHILD IF HE/SHE : Infantile haemangiomas (IH) are red blemishes or bumps made up of small blood vessels. Up to 1 in 10 newborns may develop one. They can appear anywhere on the body but about half do so on the head, face or neck. They are often not present at birth but become more obvious in the first weeks of life. Whilst many haemangiomas will shrink and disappear by the age of 10 years without treatment, some do not. Current haemangioma treatments include surgery, laser treatment, cryotherapy, oral steroids and vincristine. The HEMANGIOL study looks at using a well established heart medicine, propranolol (used to control heart rhythm and blood pressure in both children and adults) to treat infantile haemangiomas in infants 35 – 150 days of age. The HEMANGIOL study will compare a placebo (a dummy medicine) to propranolol, in approximately 450 children worldwide. If you are interested in your child being seen to evaluate potential participation in this clinical trial, please contact: Waikato Clinical Research (Hamilton) - Prof Marius Rademaker Auckland Dermatology (Auckland) - Dr Nicholas Birchall |
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What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission. Every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com
If you think your child has a hemangioma Click Here.
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Publications for Parents:
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RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS
